Arin, Diagnosed with Charcot Marie Tooth in 2021
Mary, His Advocate, Diagnosed in 1984
Working together since 2022
“At 28 I had never heard of Charcot Marie Tooth and the information online was depressing. Mary, my advocate, has been living with CMT for 42 years and thriving. She helped me understand my diagnosis in a way that actually made sense and get the best care possible. She also showed me I can still live a full life with this condition.”
– Arin P.
Medical Journeys We Support
NAVOCATE Health supports patients navigating some of the most complex medical journeys within the healthcare system.
Our advocacy focuses on situations that often require extensive coordination of care, specialized treatment, and sustained patient self-advocacy.
NAVOCATE advocates bring lived experience and training to help patients better understand their care, prepare for important decisions, and navigate complicated healthcare systems.
Organ Transplant
Transplant journeys involve complex evaluations, waiting lists, specialized teams, and lifelong follow-up care. It’s a process filled with critical decisions and moments that can feel overwhelming. We help patients prepare for consultations, understand each stage of the transplant process, and navigate the path forward with clarity.
Cancer Care
Cancer treatment often involves multiple specialists, changing treatment plans, and difficult decisions about therapy. When everything moves quickly, it can be hard to keep track of what matters most. We help organize information, prepare for key conversations, and bring clarity to treatment decisions.
Diabetes (Type 1, Type 2, and LADA)
Managing diabetes requires constant vigilance: balancing medications, monitoring blood glucose, and managing real risks both immediately and over time. For patients and families, there is no vacation from the responsibility-load; there are no breaks or vacations from the decisions diabetes demands each day. We help people understand evolving treatment options, understand diabetes’ affect on both physical and mental health without judgement, prepare for critical medical conversations, and navigate living with diabetes with clarity, confidence, and constant support.
Diabetes Complications
Sometimes diabetes brings changes that go beyond daily blood sugar management. A routine visit may lead the discovery of complications leading to additional tests, new specialists, or more matter-of-fact conversations about long-term health. These moments can feel uncertain, scary, and isolating, even for people who have strong support around them. Our advocates help patients and families understand what’s happening, their care path options, and adjust to these changes while continuing to live their lives with confidence.
Autoimmune Disease
Autoimmune diseases often involve long diagnostic journeys and care across multiple specialties. Symptoms can evolve, treatments can change, and the path forward isn’t always straightforward. We help patients understand their options and prepare for the medical conversations that shape long-term care.
Complex Endocrine Conditions
Living with Type 1 diabetes or complex endocrine disorders often means managing care across many years and many providers. Treatment decisions can evolve as technology, medications, and complications change. We help patients coordinate information, navigate those decisions, and approach care with confidence.
Chronic Kidney Disease and Dialysis
Kidney disease can involve years of medical care, dialysis decisions, transplant evaluation, and long-term management. The process is often physically and emotionally demanding for patients and families. We help people understand their options and prepare for the many stages of kidney care.
Rare and Complex Diagnoses
Rare diseases and complex conditions often bring long searches for answers and highly specialized care. Patients may find themselves navigating systems that even experienced clinicians rarely encounter. We help organize information, prepare questions, and make the path forward easier to navigate.
Families and Caregivers
Serious medical situations affect entire families, not just the patient. Caregivers are often asked to process complex information while supporting someone they love. We help families understand care plans, coordinate information, and navigate these decisions together.
(If Your Condition Isn’t Listed)
These examples represent some of the complex medical journeys we frequently support. Many serious healthcare situations involve similar challenges: difficult decisions, confusing systems, and high-stakes conversations. If you’re navigating a complex medical situation, we may still be able to help.
You Don’t Have to Face it Alone
Navigating serious healthcare decisions is never easy, especially when the stakes are high. Guidance from someone who understands both the medical system and the patient experience can make a meaningful difference. Reach out to learn more about how we can support you.